Chiari Awareness ♡

If you can’t pronounce it, don’t feel bad because I couldn’t either. Heck I wouldn’t blame you if you didn’t know what the hell it is because not very many people do. But this post will let you in on exactly what Chiari is and what you can do to help!

See my amazing friend Lizz has had to endure TWO brain surgeries due to this. And just recently, Lizz and her family found out her sister also has Chiari as well, and soon her sister will also have to have the surgery. Chiari is so uncommon that there really isn’t enough research on it to create a safer way to reduce the symptoms, described below, other than brain surgery.

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Chiari (key-are-ee) Malformation is a very serious neurological disorder located at the bottom of the brain, or cerebellum, and crowds the spinal cord putting pressure on your brain and spine.

Because of the intense pressure, there are many intense and severe symptoms. At least 95% of people with this experience 5 or more of these symptoms describe below.
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Chiari is not rare, but it often gets misdiagnosed as something else due to the large range of tests you do to simple figure out what you symptoms mean. Because of the the range, it can take up to 5 years to diagnose this. Along with that, Chiari is not well known.

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Please take the time to fully understand Chiari and the treatments for it and how you can make a difference in educating others just like I am educating you by visiting www.conquerchiari.org
If you have any questions feel free to message me! 🙂

You can also sign up for Conquer Chiari sponsered walks to help raise money for research! Check out the right side bar of the website for all your options!

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